About the Session:
Young-onset dementia (YOD) is defined as dementia diagnosed before the age of 65. Individuals with YOD face many unique difficulties starting with obtaining an accurate diagnosis, which can cause considerable stress for the individual and their families (Baptista, 2016). A lack of knowledge about YOD exists among health and social care providers (HCP) which adds to the difficulties and lack of available support. The Alzheimer Society of Canada (ASC) conducted a gap analysis regarding available learning and support resources for individuals with YOD. ASC also engaged persons with YOD to plan and deliver a webinar for HCP about living with YOD. Results from these projects will inform the development of resources for HCP supporting individuals with YOD, and for people with YOD and their caregivers. In addition, lessons learned from involving people with YOD will inform the process that ASC follows in engaging people with YOD throughout our organization.
Laura Garcia is the Knowledge Transfer and Exchange coordinator at the Alzheimer Society of Canada. She holds a Masters degree in Health and Aging from Western University. Laura’s professional aim is to raise awareness and understanding about dementia in order to help improve the experience of people living with dementia.